WW : 90 pcs of PRED
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August 20th, 2008 at 1:53 pm
have you tried goji juice i personally know someone who use is for treatment of lupus
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August 20th, 2008 at 2:58 pm
oh dear.
I get to take that stuff occasionally.
Hope you don’t get cranky like I do.
August 20th, 2008 at 5:05 pm
those are samples?
August 20th, 2008 at 5:23 pm
Hmmm? Do I dare ask what is PRED?
August 20th, 2008 at 9:06 pm
nope, i haven’t tried it but i did try drinking lactovitale and it helps me a lot. now i am in remission from lupus.
thanks for the visit. will be heading to your blog for a visit and to vote for you.
milet of lupusurvivor.com
August 20th, 2008 at 9:07 pm
nope i don’t get cranky, but i get depressed sometimes.
thanks for the visit.
milet of lupusurvivor.com
August 20th, 2008 at 9:08 pm
nope, they are not samples. just bought them from mercury drug. i’ve been taking those for 5 years now to control my lupus.
thanks for the visit.
milet of lupusurvivor.com
August 20th, 2008 at 9:10 pm
hi kim,
pred is my abbreviation for prednisone or most popular called steriods. i’m taking pred to control my lupus.
thanks from visiting.
milet of lupusurvivor.com
August 22nd, 2008 at 12:34 pm
Hayy .. I suddenly remembered my mom… she’s taking up 75grms/day of that now because of her aching feet and hands.
Hope everything will be fine now and with u sis …
September 28th, 2008 at 6:54 am
Hi Milet,
I came across your blog as I was searching about lupus. My daughter 12 was diagnosed with lupus last year. Her’s has manifested on her skin but the dr’s have said it is definite sle. Anyway, I wanted to get in touch with you about lactovitale and other tips on having a good disposition plus the road to remission. If and when you have time, please do reach me though my email add. Will really appreciate it.
By the way, we’re based in Cebu.
September 29th, 2008 at 12:36 pm
hi monica,
first thank you for taking your time to comment and i am sorry for the delayed reply.
i’m sorry to hear that your daughter has lupus at a young age. i know its harder for a mom to see her offspring suffer. if you are here in manila i would have suggested you visit my rheumatologist but since you are in cebu i think that’s out of the question. i hope that the person who is looking after you daughter is a rheumatologist.
when you say it manifested in her skin, do you mean rashes ? there are different kind of lupus, you have drug induced, discoid and SLE. Discoid is for the skin. But if her doctor said that its SLE, maybe they have some some irregularities in your daughter’s laboratory test ? Mine was diagnosed because the butterfly rash appeared. If not then I might be faced with a lot of misdiagnosis.
About lactovitale, not sure if its still being sold since I haven’t seen any of it on the stores that I am buying it. I am not drinking it now, I think for two years already. But definitely it help me a lot. If you don’t find lactovitale anymore you might consider looking for other herbal medicine. I started drinking lactovitale because of the feedback that it can cure lupus.
And about getting on the road to remission. I guess the first step would always be acceptance. Through acceptance, your daughter would start to plan the way a lupus patient would. Because us lupus patient should be systematic so as not to tire ourselves. This acceptance should be also extended to family members. Since lupus patients have a lazy streak. You might be thinking it would be an excuse but its not. Especially those early morning laziness. Sometimes those laziness are already symptoms of an upcoming lupus flare.
Lastly, I hope your daughter sees her doctor regularly as well as taking her medicine religiously, it is a tiring routine, i know but as a lupus patient it has to be that way. And if you are on the verge of giving up please remember me. I was 22 when I was diagnosed with lupus with a very promising career. Unfortunately there are opportunities that weren’t given to me like awards and promotions because I always had a 2 month sick leave every year from 2002 to 2004. On those years, I am in and out of the hospital. I got operated on the lungs, got pulmonary embolism after the operation and then a cyst on my ovary was discovered. Who would have thought that on 2005 things went back to normal. Then I got married and got pregnant. Who would have thought that the woman who can merely walk way back 2004 is now a mother and the sole caregiver for her 2 year old daughter. I have no nanny and my husband is in Kuwait for work.
God answers our prayers. We just have to be patient and always keep the faith. I do hope somehow I was able to help. If you have any questions or just want to talk I am here.
milet
http://www.lupusurvivor.com