Physicians for Patients
I received an email from Art Kaminski and I wanted to share it with you my readers because it’s another LUPUS resource. The website they have created is a community for people with lupus.
Here is the email of Art :
I wanted to pass along a new Lupus resource.
It is through a website www.lupus.physiciansforpatients.com
It is a community of lupus folks that interact online to give one another support.
There is a dedicated physician on the site to answer questions for the patients.
We originated as a group of doctors dedicated to helping people online in a way to help with high health care costs. The idea is to give a free resource to people that need alternative opinions and information. There are a lot of people that have limited access to health care (can’t find a specialist in their area, long wait times, etc.). This way it is easier for a smaller number of physicians to help a larger number of people.
Dr. Shanahan is the doctor. He is board certified in Rheumatology and trained at Duke University
In addition, we will be incorporating ‘health trackers’ soon! This tool can be used by the patients to track their symptoms and to see what may be contributing to them.
Physicians for Patients will also be looking for associations (trends in complex data sets of the cumulative data collected in this large community of patients. This is done in an automated anonymous manner). This is the exciting part! Our hope is to identify correlations between symptoms, daily activities, medications, and the environment. This will help us to better understand Lupus and hopefully to guide us to new potential treatments.
Please help us to spread the word about what we are trying to do (any group messages that can be sent/ links/ blogs are much appreciated) In order for us to make some new head way into better understanding lupus through identifying new correlations we need quite a large people to participate.
So please check out their website. Thanks.
Tags: lupus advocacy